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#backinhospital after being 13 months #admissionsfree #grr #feelingbroken Had #adventures last night with the #ivport and a blockage. #thankgod am stable now. We are working on getting me to #joburg asap. #pulmonaryhypertension #waitingfornewlungs #awesomenurses #staytuned #awesomeer staff #notabadlifejustabadday

meds4martie

How I clean with bathroom cleaners lol.They irritate my lungs so I try my best not to breathe them in and after I am done the o2 goes back on.House to myself so getting it cleaned up some without over doing it either. #cleaningwithcrappylungs #doingmybest #mylifeismybiggestchallenge #waitingfornewlungs #upmctransplant

ericalynn8605

The other day we stumbled upon a winery and were like wine not?! Sometimes you just gotta indulge. Love me some wine New blog post up! Link in bio! #lungstoryshort #cysticfibrosis #cfawareness #65roses #curecf #waitingfornewlungs #doublelungtransplant #organdonation #unos #recycleyourself #mylifewithcf #winetasting #winery

lung_story_short

Ha! Would you look at that! They put my picture around the venue at the With One Breath benefit this weekend since They dedicated the event to me. Still riding high from that wave . New blog post up of the event, link in bio #lungstoryshort #cysticfibrosis #cfawareness #65roses #curecf #waitingfornewlungs #pretransplant #doublelungtransplant #organdonation #unos #recycleyourself #cffoundation #withonebreath

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Doughnut you think these are the cutest!? so many flavors to choose from... so we sunk our teeth into all these bad boys in a matter of minutes. Imagine if they were all full sized doughnuts!?! we would have turned into whales . New blog post up! Link in bio! #lungstoryshort #cysticfibrosis #cfawareness #65roses #curecf #waitingfornewlungs #doublelungtransplant #organdonation #recycleyourself #donuts #doughnuts #gourmetdonuts #minneapolis rebeldonutbar

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I fight CF, I crush it all day everyday!. Some cold days call for a mask outside. Wearing my new pin I got from the With One Breath benefit this past weekend! #lungstoryshort #cysticfibrosis #cfawareness #65roses #curecf #waitingfornewlungs #doublelungtransplant #organdonation #unos #recycleyourself #cffoundation #cfwarrior #furryhood #winter #withonebreath #ifightcf #vogmask

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Got my eyes on you Juicy Lucy! Filling my face full of calories, one of the tastiest ways to do so is with a cheese filled burger. New blog post up about my appointment yesterday. Link in bio #lungstoryshort #cysticfibrosis #cfawareness #65roses #curecf #waitingfornewlungs #doublelungtransplant #organdonation #unos #recycleyourself #cffoundation #juicylucy #burger #chubbychasin #calories #nom #minneapolis

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Happy Friday everyone! Explored a waterfall and played with a new "toy". Thanks sparklerockpop for the smoke bomb! Keep and eye out for a new blog post Monday for a collaboration with a few salty peeps and diving into organ donation! #lungstoryshort #cysticfibrosis #cfawareness #65roses #curecf #waitingfornewlungs #doublelungtransplant #organdonation #unos #recycleyourself #cffoundation #waterfall #sparklerockpop #smokebomb #yellow

lung_story_short

Motivation Monday! Working on them noodle arms, starting out small. It may not seem like it but even small things like free weights make it harder to breathe, especially the leg machines, my goodness indeed they do! I have to take many long breathers inbetween, but I just have to keep thinking that there is a pot of gold at the end of the road because once I get my transplant I will be able to wiz through workouts like laima does! ‍ #lungstoryshort #cysticfibrosis #cfawareness #65roses #curecf #waitingfornewlungs #doublelungtransplant #organdonation #unos #recycleyourself #cffoundation #workout #motivationmonday #weights #planetfitness

lung_story_short

Any opportunity there is for an adventure we take it. The nice weather continues and would be a shame to waste it inside. Breathing in that moist waterfall air One of my main reasons for wanting to go there today was because of the stairs, as weird as it is for me to say. I usually hate stairs but I am now using them as a form of exercise when my lungs feel up to it. There are about 108 stairs down to the falls. ‍ #lungstoryshort #cysticfibrosis #cfawareness #65roses #curecf #waitingfornewlungs #doublelungtransplant #organdonation #unos #recycleyourself #cffoundation #adventure #waterfall #minnehahafalls #bigcheeks #minnesota #minneapolis

lung_story_short

Sciiiiiience! ‍ This is how we refill my portable liquid o2 canister. We have a large reservoir in the house that gets refilled by my o2 company about every two weeks. Liquid oxygen is sweet! I feel more mobile with it, especially because we also have a smaller refill reservoir in the car that we use to refill my portable on the go! The longer I have it on the colder the outside of the machine gets. The tubing also likes to start frosting. My back gets pretty cold and mists cold vapor when I take it out of the bag. #lungstoryshort #cysticfibrosis #cfawareness #65roses #curecf #waitingfornewlungs #doublelungtransplant #organdonation #donatelife #recycleyourself #cffoundation #liquidoxygen #o2

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