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Today is the 10th Annual World Rare Disease Day! World Rare Disease day is held on the last day of Feb to raise awareness for rare diseases as a means to improve access to treatments & medical representation for individuals with rare disease & their families. Did you know that over 350 MILLION people have a rare disease? And less than 5% of rare diseases have treatments. My brother has an #ultrarare disease, #atypicalhus. Thankfully #aHUS has a treatment, but most others do not. If you have a rare disease, or know someone with a rare disease, become an advocate! #aloneweareraretogetherwearestrong Contact me to learn more!!••• #wrdd2017 globalgenes #ahusstrong #shapingourpathforward #ahusfoundation the_atypical_hus_foundation

fabulousjacquet

Somebody asked me whats rare i showed them this video ! ..Follow welcome_2_virat_cityN viratkohli.lovers18 ..Rare Video Of Virat Kohli dropping The Catch Very Rare very rare as rare as a match without a virats fifty #ViratKohli #RCB #Kxip #Mohali virat.kohli #ViratCity #ViratCityEdits #Viratkohlilovers18

viratkohli.lovers18

repost via instarepost20 from fabulousjacquetToday is the 10th Annual World Rare Disease Day! World Rare Disease day is held on the last day of Feb to raise awareness for rare diseases as a means to improve access to treatments & medical representation for individuals with rare disease & their families. Did you know that over 350 MILLION people have a rare disease? And less than 5% of rare diseases have treatments. My brother has an #ultrarare disease, #atypicalhus. Thankfully #aHUS has a treatment, but most others do not. If you have a rare disease, or know someone with a rare disease, become an advocate! #aloneweareraretogetherwearestrong Contact me to learn more!!••• #wrdd2017 globalgenes #ahusstrong #shapingourpathforward #ahusfoundation the_atypical_hus_foundation  #instarepost20

the_atypical_hus_foundation

Rare Video Of Virat Kohli dropping The Catch Very Rare very rare as rare as a match without a virats fifty #ViratKohli #RCB #Kxip #Mohali virat.kohli #ViratCity #ViratCityEdits #Viratkohlilovers18

welcome_2_virat_city

Rare Video Of Virat Kohli dropping The Catch Very Rare very rare as rare as a match without a virats fifty #ViratKohli #RCB #Kxip #Mohali virat.kohli #ViratCity #ViratCityEdits #Viratkohlilovers18

welcome_2_virat_city

Lamak dah sik nggeeeetry air terlalu rare tok lam bag. Thanks juak to rare_icetea for keep support me for buy air rare and over and over again. #supreme #rare #ice #tea #alldaylong

rainyshinex

Rare Atlas Bantam 5 Cent Peanut Machine! Rare Patent Pending version! Selling for $265.00 + S/H. Etsy shop in bio! #atlasbantam #vintagevending #peanutmachine #rare #antique #collectible #gummachine #smallbusiness #forsale #tymespastandpresent

tymes.past.and.present

Enjoying a controversially rare burger at Honest Burger! Tasted fab and no sign of food poising yet! #warrennash #justeatnormal #Justeatrealfood #InstaFood #burger #hamburger #honestburger #rare #wet #beefburger #dinner #London #rare #tasty #delish #delicious #foodpic #foodpics #food

warrennash

RARE DISEASE:Did you know that: ...• There are approximately 7,000 different types of rare diseases and disorders, with more being discovered each day.• It is estimated that 350 million people worldwide suffer from rare diseases. 30 million people in the United States are living with rare diseases. This equates to 1 in 10 Americans or 10% of the U.S. population.• The Philippines has 319 reported patients accounting to 63 different disorders, not including patients who remain undetected. ...• Approximately 50% of the people affected by rare diseases are children.• 30% of children with rare disease will not live to see their 5th birthday....• According to the Kakkis EveryLife Foundation, 95% of rare diseases have NOT ONE single FDA approved drug treatment.• Approximately 50% of rare diseases do not have a disease specific foundation supporting or researching their rare disease....Thank you for always listening & supporting ..... #RareDiseaseDay #RareDiseaseWeek #GabtheBrave #littleandbrave #MapleSyrupUrineDisease #careforrare #careaboutrare #invisiblesickness #candidchildhood #dailyparenting #letthembelittle #unitedinmotherhood #motherhoodunpluged #childhoodunpluged #candidmotherhood #candidfatherhood #illuminatechildhood #littlefierceones #clickinmoms #momtog #letthekids #shinelightonrarediseases

mommying.darlings

Rare Antique Gauri Shanker Necklace with Rudraksh #antiques #antiquejewelry #antiquejewels #antiqueaddict #rare #rareantique

devakinandanverma

When people ask me "so what rare crazy stuff do you have?" This comes to mind. #nickzedd #film #art #rarefilms #rare #raredvd #toptensickestflmsevermade

rocky_the_collector

Rare classic old kawasaki 100cc 2 stroke motocycle #oldkawasaki #2stroke #rare #raremoto motorbaik

tiodelpiero21

Overnight shot - rare and stunning Volvo C30 polestar give a follow to heald26 for more of this rare Swedish beast cheers bro for the Dm , you have been entered for our top ten comp #volvo #C30 #polestar #swedish #design #tuned #rare #modified #volvoownerpics #carsofinstagram #carmegaddonuk

carmegaddonuk

Ini sumpah rare weyh... #KeretaKahwin #Rare

faris239

Psychologists often speak of the existence of a personality that is defined as "rare bird" ... That personality is an intertwine of 2-3 characteristics that make one rare to find and impossible to forget ... Be that rare bird #unforgettable #rare #personality #women #men #intelligence #sexy #classy #beautiful #talented #giving #hardworking #ambitious #independent #fit #gentleman ... Basing your success in one quality is overrated ... and replaceable... Be a good man with an edge ... A sexy woman with brain ... An Ambitious man that makes time for his wife... A strong woman will a soft heart ... #miniblack #girls #morethanlooks #letsgo #studies #psychologist #rare #women #event

anjezamusic

Couldnt resist it :) ... rare that I get rares hopefully ill get some in marchs box #mspacman #rare #veryrare #ghost #retroghost #SGB #supergeekbox #pacman

variouscollecting

Getting excited for new turntable arrival. Guy at the record store assures me David Bowie Rare German import is actually kinda rare. The Bill Withers just felt right. #cheaporecords

iamginafly

Rare disease org in Sweden have a countdown to #rarediseaseday the 28th(29) February, by sharing one rare story of the day" today was MY story "How it all started" our #journey with #FOPdiagnos (our son is 16y today) #sällsyntaliv #sällsyntadagen #sällsyntdiagnos #sällsynt #FOP23April www.sallsyntadiagnoser.se #rare #musclesturntobone #insamling #runforfopSE www.fopsverige.se #runforacure #instarunners #inspiration #life

lilbellula

First Italian edition (1979) of #Salemslot by #StephenKing. I have such a RARE treasure in my library now. #rare #library #lenottidisalem

aleschiar

This month RR Auction is offering an excessively rare Thomas Lynch, JR. signature which is certainly of the utmost rarity and is far and away one of the most sought-after American autographs. Head over to our website to see more rare and remarkable items from Declaration of Independence Signers being offered in the January auction. Bidding is open until the evening of January 11. #picoftheday #thomaslynchjr #southcarolina #declarationofindependence #signer #history #historyphotographed #january #auction #januaryauction #rare #remarkable #rrauction

rrauction

Shit photo but a rare sight. Brand new alpina b3 biturbo estate #alpinab3 #biturbo #touring #bmw #335i #rare

carmandano

Brownies bukit runtuh,,,brownies rare design and rare for your dessert table #sayaambiloder #browniesdesign #saltedcaramelsauce #hersyeykisses #walnut #instacakes #shahalam #puchong

dapuroven
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