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Photos and videos for #hearthero

Bear with me...this is a long one, but so worth watching! Look who is starting to move!!!! #mightymargaret #willcrawlforcattoys 😻😆❤️ #chdawareness #hearthero #heartwarrior #tetralogyoffallot #tof #chdsucks #tubelife #tubie #feedingtubeawareness #crawling #charliegram #goldensofinstagram

11 2 Nov 18, 2017

JUST registered to attend CHD lobby day at the 2018 Congenital Heart Legislative Conference - on Capitol Hill in February!!!! So stoked go back w/ texastnetworks & chamorritagirl01 Looks like I will get a second chance to checkout Ben’s Chili Bowl shoezeum ♥️ #jacobsheartstory #justbeamazing #chdsurvivor #chdadvocate #coarctationoftheaorta #hearthero #advocate #washingtondcorbust #capitolhill #chdwise #cardiosmart

81 5 Nov 17, 2017

Waiting for echo results. #heartwarrior #hearthero #chdwarrior #chdawareness #strongbaby 🙏🏼

19 0 Nov 17, 2017

Celebrating all preemies. Our Ella had the odds stacked against her with being a preemie (35weeks, 3 months in the NICU) chd (ohs at 2 months) and trisomy 12 (rare genetic disorder) As we go into another unknown Dr's app Monday to look at her ovaries I have to remind myself all she has overcome and continues to overcome. She is the definition of BRAVE- STRENGTH. She has taught me to be strong too! #preemieawarenessday #nicu #trisomy12 #chd #hearthero #heartmom #thankful #miraclechild #brokenheart #faith #thankyoulord

6 0 Nov 17, 2017

ANY ONESIE GIVEAWAY!! Do you have, or know someone who has a baby with CHD? Here's your chance to win a free onesie for them! All you need to do to enter is: (1) Like this post, (2) follow us on Instagram, and (3) tag a friend who would like to win too! Check out our Facebook page for an additional chance to win! #CHDwarrior #CHDaware #CHDawareness #CHDkids #CHDbaby #CHDbabies #CHD #CHDlife #CHDmomma #CHDmom #HeartHero #1in100 #zipperclub #congenitalheartdisease #congenitalheartdefect #HeartWarrior #Awareness #Giveaway #scarsarebeautiful #hlhs #hlhssurvivor #hlhsfigjter #hlhswarrior #chdsurvivor (Disclaimer: contest not affiliated in any way with Instagram. Contest ends Saturday, 11/18/17 at 3 pm MDT. A winner will randomly be selected and announced shortly thereafter. Good luck!)

33 17 Nov 17, 2017

I tried to get a video of Colton bouncing & yelling in bed when we walked in his room, but it didn't work out. (I have another video that I'll post shortly though. ☺) Colton's doing well! He stayed on 2L of O2 all day. He's been a little more grouchy today, but I think seeing his big bro made him feel better. ❤ . . . . #ColtonStrong #tricuspidatresia #hypoplasticrightventricle #tetrologyoffallot #unbalancedavcanal #chd #heartwarrior #hearthero #hirschsprungsdisease  #downsyndrome #downsyndromeawareness #dsdn #trisomy21 #t21 #theluckyfew #downrightperfect #littlebrother #tubie #babieswithglasses #glasses #changingthefaceofbeauty

1888 53 Nov 17, 2017

You ever feel so ready to have your life be completely changed for the better ? I’m so restless 😬 I’m starving for more and all I can say is Things will be changing drastically I swear . #motivation #believeinyourself #selflove #sweden🇸🇪 #swedish #viking #paintedearth #dewyskin #selfie #summerfun #actress #singer #summerloving #summertan #modeling #model #heartdiseaseawareness #hearthero #swedish #blueeyes #instagood #naturalhighlight #blessed #follow #BMGModels #hearthero #modelswithscars #photography #famouslyinlove #happiness #viking

50 2 Nov 17, 2017

When I see your face my beautiful little man the whole world melts away! . . . . . . . . . . . . #mylove #son #toddler #happy #smiles #happiness #joy #laughter #silly #family #love #blessed #myworld #mamaandson #proudmama #cutekids #bitzkids #hm #mamaandson #citykid #manhattan #nyc #thursday #tof #chd #hearthero

95 1 Nov 17, 2017

That time Syd got to fly like the #superhero she is! #tbt #ifly #capedayatl #childrenshealthcareofatlanta #chdawarness #hearthero

40 0 Nov 17, 2017
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