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Photos and videos for #hearthero

15/365 Paul loves his Grammy Barb so much! ❤ #heart❤️ #chdwarrior #chdawareness #chd #chdwise #paulismyheartwarrior #hearthero

0 0 Jan 17, 2018

S A M M Y ‘ s H E A R T I V E R S A R Y ♥️ ____/\__/\/\____/\/\/\_/\/\___/\/\/\__♥️ It's today !!!!!January 16th 2o12, The day that changed our lives forever. Sammy's second Open Heart Surgery day was here and it was time for mommy and daddy to give Sammy every bit of lovin' before they let the anesthesiology team take him into OR. Hours later, (( praying to the lord "please father help my baby, help these doctors mend my baby's heart" )) doctors-"Everything went well!!!" ((Thank you lord, Thank you for everything!!!)) next day he gets extubated (breathing tube comes out) On the third day is where it all began.....these involuntary movements, he just couldn't stay still. And the worst part ever he didn't know who I was. "Its Mommy Sammy, please come back to me." 😢 Days went by with no answers until on his birthday (jan25th) an MRI was done. Doctors- "your son suffered a stroke and a part of his brain was damaged (globus pallidus), he will now have these movements (chorea) forever, he will not be able to do much for a very very long time because these movements will not let him." It's been 6 years and let me say he has progressed a whole lot! These movements are now controlled, A little sign language, waiving bye, sits up with no support, blowing kisses, rough playing with daddy, clapping, scoots himself all over the house, imitates snapping his fingers, takes steps without needing his gait trainer 🙌🏼😍 feeds himself his little snacks, loves pizza and pasta (alfredo), now he’s able to drink a bit of fluids without coughing/getting an upper respiratory infection 🙏🏼🙌🏼 shoots basketballs in his ball pit, but my all time fav is him knowing who mom and dad are and I know for a fact that he can feel our love and dedication for him! Mommy and daddy are so proud of you son! #TeamJSB 💙 #heartiversary #hearthero #scars #chicksdigscars #heartwarrior #pediatricstrokesurvivor #involuntarymovement #interruptedaorticarch #hero #son

52 2 Jan 17, 2018

#Repost amysmeats with get_repost ・・・ So I was home sick today. Not 💔 related. But I had to get up for the postman. I’m glad I did as he brought me this piece of loveliness. Thanks chdwarriorshop I love it. Although it gets dropped A LOT. My phone is finally safe! #chd #chdawareness #chdaware #heartblog #chdblogger #chdblog #chd #tga #vsd #heartwarrior #openheartsurgery #hearthero #chdsupport #zippersister #chdwarrior #zipperclub #heartiversary #1in100 #thebhf #strength #congenitalheartdefect #bornthisway #achd #chdwarriorshop #phonecase #phone

5 0 Jan 17, 2018

So I was home sick today. Not 💔 related. But I had to get up for the postman. I’m glad I did as he brought me this piece of loveliness. Thanks chdwarriorshop I love it. Although it gets dropped A LOT. My phone is finally safe! #chd #chdawareness #chdaware #heartblog #chdblogger #chdblog #chd #tga #vsd #heartwarrior #openheartsurgery #hearthero #chdsupport #zippersister #chdwarrior #zipperclub #heartiversary #1in100 #thebhf #strength #congenitalheartdefect #bornthisway #achd #chdwarriorshop #phonecase #phone

4 2 Jan 17, 2018

"Scars are tattoos with better stories." Our Scars are Beautiful sweatshirts are now available in our shop! (link in Bio)

41 1 Jan 16, 2018

The Human Heart has fascinated me since I can remember. The fact that it beats about 100,000 times per day (about 3 billion beats in a lifetime) to it pumping about 6 quarts (5.7 liters) of blood throughout the body. I’ve always been amazed with the professionalism of doctors and having gone through my own experience of Open Heart Surgery. I can officially say that I’ve never been more inspired to become a Cardiologist. The fact that I can share my experiences with future patients, Build relationships and do something that I am fascinated & love for the rest of my life. I cannot be more happier! I Thank god for keeping me alive and showing me a brief glimpse of what the future holds for me! #FutureCardiologist ?!

31 2 Jan 16, 2018

Back in stock. www.happyredheadstudio.etsy.com #chd #chdawareness #hearthero #chdbracelet #etsyshop #heartmonthiscoming #chdsurvivor #chdaware

0 0 Jan 16, 2018

Wohoooo we are discharged, we dont have to stay!!! They decided to do a "catheter light" as soon as we arrived. Everything is looking just perfect so we are sent back home!!! Wohoooo my hero!!! #hlhs #nocatheter #backhome #hearthero #packedfornothing #surprise #myboy #instagood #instastory #liveauthentic #livethelittlethings #littleandbrave #littlefierceones #vienna #byebye #to #hospital #sohappy #lucky #superhero #weneedacape

38 11 Jan 16, 2018

“You’re not always going to make winning decisions. That’s part of figuring out how to get to the winning ones.” New blog 🤙 Link in the bio • • • #TheAlliance #WhyIWantToHugTheWholeWorld #ChoiceAndTriumph #HeartHero #Success #Dream #Dreamer #speaker #coach #lifecoach #author #writer #LA #Pittsburgh #412 #ATL #book #travel #traveler #blog #blogger #bloglife #blogged

38 0 Jan 16, 2018

"We are one in one hundred, and we fight with all our hearts." 🥊🖤

55 1 Jan 16, 2018

Viehkeä seuraneitini ❤️ #chd #sydänlapsi #hearthero #zipperclub #tetralogyoffallot #pulmonaryatresia

24 1 Jan 16, 2018

Just a little catch with wadewright1 Pop flies yesterday were with a tennis ball...I just feel better about that! But he for sure prefers playing catch like this “the real way!” #iwanttobelikemike #hearthero

47 0 Jan 16, 2018

Muhammad Harsya Danendra, mama sama papa udah keren-keren ngasih nama malah diganti jadi Mamamat Aca Duria 🤣 . My little sugar boy ❤️ . #rarewarrior #hearthero #22qutie #digeorgesyndrome #specialneeds

78 0 Jan 16, 2018

Here we go: Dance baby shark part 1 and part 2. . Harsya paling suka dance, ga bisa denger suara musik atau orang nyanyi dikit aja pasti badannya ikut goyang. Kalau kata yangti, persis kayak mama waktu masih kecil dulu. Yeah, like mother like son ya, Ca! . #dancevideo #tayo #hearthero #specialneeds #rarewarrior #22q

24 1 Jan 16, 2018

Meet Kinley. She will be celebrating her 6th birthday this week! Her CHD is tetralogy of fallot /w hemitruncus. She also has 22q deletion syndrome. She’s had two open heart surgeries, full repair at 8 days old and the second at 4 and a half for her pulmonary valve replacement. Kinley is absolutely rocking this #1in100 look I think you'll agree! #heartwarrior #hearthero #chdawareness #chdwarrior #chdhero #gowiththefallot #tetralogyoffallot

33 1 Jan 16, 2018
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